Thursday, September 22
5:00 PM - 6:00 PM PT
Registration is required for this free live private Zoom event.
Please join The Friends of the Semel Institute for Neuroscience and Human Behavior at UCLA and the Resnick Neuropsychiatric Hospital Board of Advisors for an Open Mind program, Salt in My Soul - An Unfinished Life with Diane Shader Smith, writer, publicist, and cystic fibrosis advocate, and Brenda Bursch, Ph.D., medical psychologist and professor in the UCLA departments of both Psychiatry and Pediatrics.
Salt in My Soul offers a rare look inside the mind of a young woman, Mallory Smith, who was diagnosed with cystic fibrosis at the age of 3. After her untimely death at the age of 25, her mother, Diane Shader Smith found Mallory’s secret diary in which she recorded her inner thoughts and her mental health challenges while she struggled to live mindfully and joyously while dying. Diane Shader Smith posthumously published the bestselling memoir based on Mallory’s diary and a documentary film by Will Battersby of Reno Productions ensued that can be viewed on Apple TV.
Diane Shader Smith, mother of Mallory, is a writer, speaker, publicist and fundraiser. When Mallory died at the age of 25, her catastrophic loss led Ms. Smith on a new path, both unexpected and transformative. A UCLA graduate, Ms. Smith has been interviewed by The Today Show, The New York Times, The Los Angeles Times, National Public Radio, The Hollywood Reporter, and many other media outlets. In the midst of her profound grief following the loss of her daughter, Ms. Smith gave a TEDx talk about love, loss and legacy. She has raised more than 5.5 million dollars for basic science research with a current focus on phage therapy, a novel treatment to combat antibiotic resistance, one of the biggest threats to global health, food security, and development today.
Dr. Brenda Bursch will join Diane Shader Smith in discussion following her presentation. Dr. Bursch is a medical psychologist and a professor in the UCLA departments of both Psychiatry and Pediatrics. She spent 30 years working with medically ill youth hospitalized in Mattel Children’s Hospital at UCLA. In recent years, she has been working to embed medical psychologists into many of the UCLA subspecialty pediatric medical clinics, including pulmonology, where patients with Cystic Fibrosis are cared for.